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Registration Fees & Opt-Ins

Registration

Affected Community
Adults (Ages 21+)
Young Adults (Ages 13-20)
Children (Ages 2-12 years) *
Infants (Ages 0-23 months)
Fee
$125
$100
$50
Free
Professionals
Academic Researcher/Clinician *
Industry Representative
Fee
$125
$500

 * Waived if registered for Kids Camp

Kids Camp

Unattended
1 child, unattended
2 children, unattended
3 children, unattended
4 children, unattended
Fees
$150
$225
$275
$325
With Personal Attendant
1 child, with care attendant
2 children, with care attendant
3 children, with care attendant
4 children, with care attendant
Fees
$75
$100
$125
$150
  • Programming and Activities for Children ages 2-12 for the duration of the Affected/Family Sessions (Saturday & Sunday ONLY).

  • Children under the age of 2 may participate in Kids Camp activities at no charge as long as they are accompanied by a personal attendant at all times. Kids Camp Attendants cannot be responsible for children under the age of 2.

  • Children must be registered for both days; you may not register for just one day of Kids Camp. There are no exceptions.

  • Kids Camp attendants will have some understanding about special needs related to a child with a neuromuscular condition. They will escort a child to the restroom, but will not assist with toileting related to mobility limitations. They will also not assist with feeding, suctioning, breathing treatments, or taking medication.

  • Children attending Kids Camp along with their own personal attendant will receive a discount. We'd also appreciate any volunteers willing to be an attendant, or to minimally assist Kids Camp attendants while performing personal attendant duties. Please use our contact form if you would like to offer your assistance.

Hotel Accommodations

Hotel Dates
Monday-Thursday, June 27-30
Friday-Sunday, July 1-3
Monday-Tuesday, July 4-5
Per Night
$304
$243
$304
Hotel Dates
Prior to June 27 or after July 5: Invoiced after registration submission, limited availability

Hotel reservations for standard (non-accessible) rooms must be made through our event link: scifam.info/hotel-reservations

You may customize check-in and check-out dates, and the number of beds (1K/2Q) during booking, and you may request adjoining rooms.

 

Accessible rooms are extremely limited. If you can manage your stay in a standard room, please book your reservations using the link specified above.
 

If you require an accessible room, please email us at scifam@curecmd.org with the following information:

  • Your Name

  • Affected Individual's Name and Age

  • Neuromuscular Subtype (CMD, NM, TTN)

  • Type of room needed (roll-in shower or accessible tub)

  • Specify 1 King or 2 Queens
     

Note: Given the short supply of accessible rooms, families with affected children are very unlikely to be assigned this room type. As an alternative, you may choose to book your room offsite, at a different hotel, or an Air B&B-style rental. The closest alternative hotel (0.2 mi) is:
 

Philadelphia Marriott Old City
One Dock St
Philadelphia, PA 19106 USA
+1-215-238-6000

 

Accessible rooms are likely to go quickly, so book soon if you need this type of reservation.

Hosted Meals

Meals-Adult
Breakfast, age 13+, Thu-Sun
Lunch, age 13+, Thu-Sun
Dinner, age 13+, Thu-Fri *
Friday Welcome Reception
Saturday Group Dinner
Pricing
$52
$75
$109
Free
**
Meals-Child
Breakfast, age 2-12, Thu-Sun
Lunch, age 2-12, Thu-Sun
Dinner, age 2-12, Thu-Fri
Friday Welcome Reception
Saturday Group Dinner
Pricing
$38
$46
$46
Free
**
  • While we hope you will join us for our Saturday Group Dinner, attendance is optional, meals (see food here) are *self-pay. *to be the responsibility of the guest

  • All prices are for plated meals, and include a conference venue service charge (26%) and sales tax (9.75%). Pricing is set the by venue.

Cure CMD

3217 Carson St #306

Lakewood, CA 90712 USA

All Rights Reserved

Cure CMD 2025

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