Cure CMD and Team Titin are pleased to welcome you to
2021 Virtual SciFam, May 21-22!

This year's conference will be hosted 100% online. Registration will be required for one virtual "connection" - meaning that if you will be attending the conference with family, friends or colleagues at the same location, you only need to register once. There will be an opportunity to share information about each person attending during registration.

Subtype-specific breakout sessions will give you the opportunity to ask questions about the latest research or care trends for your or your loved one's specific subtype. As these breakouts will be short, we would like to make the most of our time by soliciting your questions prior to the conference.

Using the button below, please send us your research or care questions so that we can tailor 2021 SciFam programming to what matters most to you!

Registration Fees


Affected/Family: $35*
Researchers & Clinicians: Free
Nonprofit Organizations: Free

Industry/Other Stakeholders: $100*

*connecting via a single log in

If you are not able to attend live, you may still register to gain access to all conference sessions through August 31, 2021.

We are also offering a free Kids Program on Saturday, May 22 to help entertain your little ones while you attend sessions. The Kids Program is free to anyone who has registered to attend the conference and separate login credentials will be provided.

We look forward to seeing you in May!

2021 Virtual SciFam Agenda
Sessions and times are subject to change. Session hosts are still being added.
Additional on-demand, pre-recorded sessions are being planned - stay tuned for additional information.

Session times *should* automatically convert to your timezone. To verify this, the Welcome & Overview session on Friday, May 21 will begin at 10:30 am Eastern (New York) time. Please email us if your view is not correctly displaying your timezone.

You may click the buttons below to see the agenda in a calendar format, or filter sessions by a single disorder subtype.

Saturday Kids Program
Open to all conference registrants at no additional cost

Stay tuned for a Save the Date announcement for 2022 SciFam!