The 2019 Congenital Muscle Disease Scientific & Family Conference

 is hosted by three rare disease nonprofit organizations:

Cure CMD
Team Titin
A Foundation Building Strength


Copyright © 2019

Please direct inquiries to:

Cure CMD

19401 S Vermont Ave

Suite J100

Torrance, CA 90502 USA

Thanks for Attending

2019 SciFam
Session Recordings Available Soon

Share your thoughts in our
post-conference survey

July 25-26
Scientific Symposium

July 27-28
Family Conference

Renaissance Hotel
Downtown Chicago

1 W Wacker Drive

Chicago, IL 60601 USA

With Thanks to Our Conference Partners

This conference is funded in part through a Patient-Centered Outcomes Research Institute (PCORI)

Eugene Washington Engagement Award (EAIN-00026)

Why attend SciFam?

Join us for the first-ever congenital muscle disease collaborative conference for stakeholders in the Congenital Muscular Dystrophy, Nemaline Myopathy, and Titinopathy communities.

This four-day gathering will feature a two-day Scientific Symposium attended by the world's top experts in neuromuscular disease, followed by two days of conversation, education, and support for affected individuals and families. We anticipate attendance of more than 350 engaged individuals who are eager to learn and connect.