Scientific Symposium
The Scientific Symposium is by invitation only.
Session titles will be updated as they are received.
Scientific Symposium
(Thursday & Friday)
Family Conference
(Saturday & Sunday)
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For researchers and clinicians to identify research priorities, share ideas, and propel research
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Highly technical language; no lay translation provided
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Attendees must sign a confidentiality agreement
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Interaction with presenters limited to one 30 minute session per day
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Small children may not attend so as not to disrupt the session, no childcare available
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For affected individuals, caregivers, and families to learn and connect with experts, and ask questions
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Presentations in lay language and practical terms
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Content is open to everyone and free to share
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Interaction with presenters encouraged throughout - they want to connect with you!
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Attendees of all ages welcome (most sessions), childcare and kids entertainment available