Scientific Symposium

The Scientific Symposium is by invitation only.

Session titles will be updated as they are received.

Scientific Symposium
(Thursday & Friday)

Family Conference
(Saturday & Sunday)

  • For researchers and clinicians to identify research priorities, share ideas, and propel research

  • Highly technical language; no lay translation provided

  • Attendees must sign a confidentiality agreement

  • Interaction with presenters limited to one 30 minute session per day

  • Small children may not attend so as not to disrupt the session, no childcare available

  • For affected individuals, caregivers, and families to learn and connect with experts, and ask questions

  • Presentations in lay language and practical terms

  • Content is open to everyone and free to share

  • Interaction with presenters encouraged throughout - they want to connect with you!

  • Attendees of all ages welcome (most sessions), childcare and kids entertainment available